A select list of resources for people interested in learning more about ME/CFS and other chronic condition mentioned in the Zebra Chronicles is presented below, as are various forums to engage with others.
Please note that the resources listed below do not constitute medical advice. The Zebra Chronicles and Solomon-Berl Media, LLC, do not endorse or take responsibility for the content of any of these resources and forums, but wanted to make the links available to those who are interested. We welcome suggestions of additional resources to add to the list.
The Bateman Horne Center
The Bateman Horne Center (BHC) is a non-profit, interdisciplinary Center of Excellence where clinical care, research, and education meet to collectively advance the diagnosis and treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), post-viral syndromes, and related comorbidities.
Stanford Univerity, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Initiative
Stanford Univerity, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Initiative onducts extensive clinical research in an effort to improve diagnosis and treatment of this debilitating illness
Health Rising’s goal is the eradication of ME/CFS and fibromyalgiaby sharing the latest research, treatment and advocacy news.
The Centers for Disease Control (CDC)
The Centers for Disease Control (CDC) is an agency within the U.S. Department of Health and Human Services, is a science-based, data-driven, service organization that protects the public’s health. They have several resources on ME/CFS on their website.
The National Institutes of Health (NIH)
The National Institutes of Health (NIH)’s mission is to seek fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to enhance health, lengthen life, and reduce illness and disability. They have ME/CFS information on their website and also host conferences on the topic.
ME/CFS Community Forums
Phoenix Rising provides support and community to people with ME/CFS and related conditions by publishing articles on ME/CFS and maintaining a community forum on the web to both inform and empower patients and features some excellent resource information.
#MEAction is an international organization that works to develop and support a global network of individual advocates, local and affinity groups, city and state chapters, and country affiliates.
The Solve ME/CFS
The Solve ME/CFS Initiative is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for ME/CFS, Long Covid, and other post-infection diseases.
Health Rising is dedicated to providing timely, accurate information to people with ME/CFS and fibromyalgia.
Patient Blogs and Muti-Media
Unrest is a Sundance documentary winner by Jennifer Brea, an ME/CFS patient.
Live with ME/CFS
Live with ME/CFS is a blog is about how a family lives with chronic illness, with a focus on improving conditions and enjoying life despite these challenges.
The Mighty is a community of people with lived experience sharing their honest stories and helping people connect with others around mental health, chronic illness, rare disease, disability, and more, including ME/CFS.
#MEAction is an international network of patients on the Facebook platform empowering each other to fight for health equity.
Chronic Fatigue Superhero
Chronic Fatigue Superhero is the creation of Australian comic book author Michael Towers who tries to bring humor into the lives of “fellow Chronic Illness Warriors,” while also sharing advocacy for a condition still rarely understood by the mainstream.
Jeff Wood writes about his largely self-directed path to ME/CFS remission.
Suzan Jackson blogs about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Prevention Magazine’s “We Are Not Invisible Project” features a collection of stories to raise awareness for those with invisible disabilities such as ME/CFS.
Long Covid Podcast
Long Covid Podcast explores the many things that can be done to help, through a mix of medical experts, researchers, and personal experience from those who know it best –“the Long Haulers.”
Deep Transformation Podcast
Lynn Fuentes discusses the unwanted challenge of chronic illness, including from an existential and spiritual perspective.